On most nights, 5-year-old Hailey Beck would be bathed and washed in a baby tub that she had outgrown years ago or the kitchen sink. Other times, a parent would have to hold her in the tiny shower …
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On most nights, 5-year-old Hailey Beck would be bathed and washed in a baby tub that she had outgrown years ago or the kitchen sink. Other times, a parent would have to hold her in the tiny shower stall. Beginning this week, those days are over. The St. Louis chapter of the Make-A-Wish Foundation granted a wish to Hailey Beck and her Warren County family by installing a whirlpool tub in their home. The new tub project was completed and unveiled Monday. When Hailey was several months old, she was diagnosed with Rett syndrome, which is a developmental disorder often misdiagnosed as autism, cerebral palsy or nonspecific developmental delay. She does not speak, cannot walk or sit up on her own. The Make-A-Wish Foundation grants wishes to children with life-threatening medical conditions. Family members are thrilled Hailey, the daughter of Ashley and Shawn Beck, will be able to take a regular bath for the first time. "The tub will help," Ashley said. "It will be very therapeutic to her body and muscles and help her range of motion." Heggemann Plumbing, JnJ Creations and Plumbers and Pipefitters Local 562 donated the materials and labor spent on the job. The Warrenton Rotary Club donated over $2,000 to cover the cost of the tub and other materials. The entire project cost more than $10,000 to complete. Work on the new tub began last Thursday and final touches were made on Monday. The project took over a year to get approved and started. Dubbed as "The Hailey Project," the bathroom renovation was a first for the Make-A-Wish Foundation, which in the past shied away from home renovations or upgrades. Local chapter members, however, were able to convince the national organization to amend bylaws and proceed with the costly project thanks to continued perseverance and local support. Stephanie Hampton-Boeglin, who oversees program services for the Make-A-Wish Foundation, said the project wouldn't have been possible without the Rotary and local businesses' generosity. "Without the assistance of corporations and sponsors, the Rotary, we can't operate," she said. "When we had everybody jump in for a wish that we didn't know if it's going to get approved, that was amazing to us. For everybody to stay on board with us, we appreciated that." The wish granted to the Becks has set the groundwork for similar projects in the future. "What you've done for us, as a chapter, you've opened up a door that will be endless," Hampton-Boeglin said to Hailey's mother, Ashley. "We have children like Hailey, things like this make an impact whether the child needs to be soothed or their muscles are aching." Katina Ohmes, an insurance agent with The Scott Agency, said she was glad the Rotary Club could assist in the project. She had worked with the Make-A-Wish Foundation when she taught at Washington High School and had officials speak at one of the Rotary's weekly meetings. Upon learning that local children were on the wish list, she proposed that the group consisting of community and civic members help grant the Becks wish. "It's been a long time since the Rotary has done something like this on this level," Ohmes said. "It was something I felt went along with our mission. I am glad to see this happen." Ashley Beck said at one time they were interested in possibly taking a family vacation to Disneyland or elsewhere. But due to her daughter's condition, Ashley said it made more sense to ask for a wish that would have a lasting, daily impact on her daughter. "You can go to Disneyland and when you come back, it's over," she said. "With Hailey, I couldn't see her reaping the benefits like other children. She's going to love (the tub).We felt this was something that would last for her. She wouldn't get the concept of going to another state. It wouldn't be for her. This she will love." As Ashley looked over the completed project Monday with Make-A-Wish Foundation officials and local volunteers, she recalled how Hailey enjoyed spending time in their aboveground pool during the summer. It now can be a daily occurrence. "This is awesome," Beck said. "This is so cool. She will love it. We can have a baby pool year-round."